Monday, August 22, 2011

Richard’s Call to Action Posted by RichardTaylor at 13th July, 2010




Stand up! Speak Up! Do not become a victim of your own silence.

Speak for yourself and those who will follow. Ask Carers and Friends to do the same.

Today will never be here again. Time is of the Essence!! Use it wisely!!

Tell as many people as possible your perceptions of your interactions with pro
fessionals, with carers, with friends, with strangers, with your government.

They won’t change unless they know, and they can’t know unless and until you SPEAK UP!

Seek to create a Palpable Sense of Change and of Urgency!

Join a Crusade, Now!
Be a Crusade, Now!
Lead a Crusade, Now!



In the eyes of many others, sometimes even the eyes of caregivers, I am seen as less than a complete someone. Just because my memory is failing me, just because a region of my brain is failing, just because I don’t always think like you do, nor do I remember as much or how you do, please, please know that in my own eyes, and I hope your eyes,  I am still a whole and complete someone. I am still me.  I am still Grandpa, and Dad, a friend, and whole and a complete Human Being.  I am in my mind still and have always been a complete person.  I am not becoming any less a person simply because I cannot remember like you, talk you do, or think like you do.   I know many of you want me to be who I was yesterday, or last year, or the last time they saw me, but I cannot be, nor do I any longer want to be.  I have ceased looking back over my shoulder at who I was, and now spend most of my time working on who I am , one day at a time.
Please help to enable me to be all that I can and should be.
Thank you!
Richard Taylor
richardtaylor.com
richardtaylorphd@gmail.com
“Aim above morality.
Be not simply good,
Be good for something.”
Henry David Thoreau

Wednesday, August 17, 2011

I CAN


The first time that I stepped in to the Alzheimer’s Association in Midland, MI I was scared and nervous.  I had a phone call from Erin Wallace (Senior Service, Seasons Program Manage) had a phone call from Alzheimer’s Association looking for an Early Stage AD(Alzheimer’s Disease) person to speak at Alzheimer’s Run for Reagan for Research, Saginaw, Mi SVSU on 4-9-11. Erin gave me the phone number to speak to Jo Campbell at Greater Michigan Chapter/ Central Michigan Region.  My next thing I did was get to my knees to ask God if it is His will and I felt OK.  When I called I got the information how to get to the building, up the stairs, in to the room, I liked being there, no fear.  I had 3 days to get ready to what can I say.  Praying a lot!  I did,   The name for the writing was: Speak Out!


When I was in the building she told me that they had some books that I might like to read and I did.  I picked up” Richard Taylor’s” Book : Alzheimer's From the Inside Out.   I learned that he had a blog and I thought I might be able (with help) to do my thoughts in a blog.  I sent an email to Richard about my stories and he email back.  I like:  I Can   I Will!     I know you will too.



Posted by RichardTaylor at 10th August, 2011
September is World Dementia Awareness Month,
and Laura Bramly and I are working with the World’s Alzheimer’s Association (Alzheimer’s Disease International) to develop a web site that lists ideas from around the world of how folks can stand up and speak up during the month of September. This web site is almost ready, but not quite. We are still accepting contributions so when we are ready to go live with the web site, we can begin with many many ideas for others to consider adopting as their own.
Here are some real contributions we have already received, plus instructions on how you too can join us.

Thanks for your support this project. Please pass the word about this project to other like-minded folks. Email your contributions to: standupspeakout2011@gmail.com.

We will gladly help you with the form if you will just send us your ideas, plus if you want a picture of yourself. Pictures make our words/ideas seem more personal! Thanks for joining other kindred spirits in creating this “best practices/trial and error” clearing house.
Richard

On the I CAN! I WILL! website we will publish cyber books. Each book will be filled with your suggestions for activities to raise awareness about dementia and to fight against the stigma. There will be one book with ideas that people living with the symptoms of dementia might consider implementing, plus books for their family carers and friends, medical professionals, professional carers, Alzheimer’s Associations and others. This site will develop into a resource for individuals, groups, organizations and countries to consult when they are looking for ideas of how to stand up and speak out.

Suggested Format for Postings

Here is the suggested format for the idea posting. If you feel comfortable doing so, please provide a photo of yourself. To give you some guidance regarding activity ideas and format, sample postings are included after this section.

1. Subject line/title: One short sentence describing your idea.

2. Introduce yourself (whatever information you are comfortable making public). For example:
· Your name (at least your first name), where you live (town, state/province, country).
· If you have dementia, what form of dementia (Alzheimer’s, Lewy Bodies, etc.), how long since your diagnosis.
· If you are a care partner, for whom, how long, what form of dementia.
· If you are a professional in the field of dementia, what do you do and where?

1. Summarize your idea or just tell us your story.
You can outline your idea and the reasons behind it; perhaps you are basing your awareness-raising activity on your own personal experience. If you think that talking about your personal experience will help someone else to understand and implement your idea, then please provide as much information as you feel comfortable.

2. Who should think about implementing this idea?
For example, is your idea targeted to a person with dementia, a doctor, an activity director? This doesn’t mean your idea is restricted to only being done by that type of person; this information just helps us categorize your idea and make it easier to find on the website.

3. Contact Information: Web page, book, and/or email address of the idea author
A Sampling of Ideas Submitted Thus Far

Here are some ideas from folks from around the world, both with and without dementia. These are real ideas, contributed by real people, and these will be live on the website when it is launched. These ideas are meant to inspire you to contribute your own ideas. Send your ideas to standupspeakout2011@gmail.com.

Monday, August 15, 2011

Let's Talk Words #5 Pray



Pray

To pray is to take action:  I am talking to God.  I can use the word “ pray” and with adding am “er” or an “ing”, I can expand it to prayer or praying.   Sometimes I don’t know how to pray, what words to say, whether to be silent or say it out loud.   Do I go on my knees, standing up, sitting down, hands together, hands in lap, arms up and out or walking?  Do I pray alone or call someone out to pray with me?  
Spiritual Disciplines Handbook: Practices That Transform Us
  -- By: Adele Ahlberg Calhoun (Inter-varsity Press / 2005 / Paperback)

I have this book that has helped me to grow in spiritual disciplines.  So, when I was studying this book, I found they outlined different types of prayer.  Some of these types are:  Centering, Contemplative, Conversational, Fixed-Hour, Inner Healing, Intercessory, Labyrinth, Liturgical, Prayer Partners, Praying Walking, Praying Scripture, and more.  One way I learned to use: Praying Scripture.  When I go to a scripture and God is asking us or telling us his words I make them personal.  For me, some days, I want a private time and I really feel that I am face to face and connected with my soul and His Sprit.  Here is an example:

 John 3:16

New International Version (NIV)

 Lord, You so loved the world that you gave your only Son, that whoever believes in You shall not perish but have eternal life.          Thank you, God!   I am talking with God and He with me.

Why do I pray?  God told me to.  I pray to talk to God to ask Him for help and He answers.  I pray for strength, for hope, peace, joy, love.  I pray to Him to remind me I have to follow His Will not mine.  I get in trouble if I don’t.  And I pray for all of his children in many ways of peace, love, joy, hope.
When to pray?  Any time!  When?  In the morning, in the afternoon and night:  I can pray at any time.  I pray when I am happy or not, when friends, family, or anyone else is in need of prayers.  I pray when I am so thankful for God’s Gifts to me to pass on to others … it just seems right.

Where do I pray?  Anywhere!  Where I want to go!  I remember, the time in the grocery store when a friend needed a prayer for a family member’s problems. We hugged and prayed in the aisle.  In Brazil, in the church, the Pastor started the prayer, my head was down, eyes closed, listened quiet and realized that there were people talking at the same time.  How rude!   I started listening, I heard one person was praying for the pastor, another praying for family, another praying for the person who would be sharing the sermon.  Every one of them were praying different prayers.  I was the only one alone not praying.  Now I can pray everywhere. 

Who can pray?  Anyone! I can pray; you can pray.  Anyone can pray:  even those who are not sure they could pray.  One word can be prayer :  God.  Lord.  Help!  Why?  God listens!  A person who killed their family still has the right to pray.  Those who killed the Navy Seals can pray.   We have a God that loves us so much that He sent His Son to die for us so we can be able to pray when we felt unworthy.  He still loves us.  Thank you, Lord!

What do I pray for?  Anything!  I pray for people for other people’s health, ministry, God’s Will, families.  I pray for me!  I ask what I should do, what should I give back, where should I go.  What does He want me to do is a mystery.  I can pray for anything.  God will listen.

How do we pray?  Anyway we want!  We can pray out loud, silent, laughing, singing, on our knees, standing up, laying flat down on the floor, dancing, crying sad or with joy, with the bible, walking, driving, one word, in our house, on the street, church, stores … any way we feel we can connect with our God.

I don’t know how I could live my life without praying.  I pray so many times, for many reasons and in so many places.  I can’t image how many times in my life I have prayed.  I can’t figure out how many times I prayed crying for help, for joy, for friends, for not so friends, for my God, for darkness, sunlight, rain, drought or for celebration. 
Right now I am praying : My God, I am in need to use your words so others can know You.  I can’t do it alone.  Lord I love you so much, you tell me what to do when I don’t want to hear it.  Yet you give me a way to do what needs to be done.  So Lord, I will keep going on this blog and it will get done with You. 

Thank You

Yesterday I started on my knees, I prayed for God’s will for this day, prayed that the words on this blog will make sense and others will know God is with me in my walk with Alzheimer’s  Disease.  It will not go away.  It can be slowed down though.  One day this past week, at 4:00pm, I met the doctor to find out the difference in my condition, comparing last year to this year’s changes.   I was sure there are changes, I feel them, see them, hear them, laugh with them, cry with them and still have Hope, Joy, Love and Peace on my journey with God and Alzheimer’s Disease.  Well, I have been blessed, I am still on early stage of my disease, I have lost some things but I am still alive.  Yay!!!    Thanks to all of you that were praying for me.  I love you all!

The Model Prayer:  Matthew 6:9-13   
Our Father in heaven
Hallowed be Your name.
Your kingdom come
Your will be done
On earth as it is heaven.
Give us this day our daily bread,
And forgive us our debts
As we forgive our debtors.
And do not lead us in to temptation,
But deliver from the evil one.
For Yours in the kingdom and the Power and the glory forever . Amen.

Blog  #6         New words are:  Laughter and Smiles 





Monday, August 8, 2011

Yesterday! Today! Tomorrow


                                         
Yesterday, Today and Tomorrow*

“There are two days in every week that we should not worry about, two days that should be kept free from fear and apprehension. 

One is yesterday, with its mistakes and cares, its faults and blunders, its aches and pains.  Yesterday has passed, forever beyond our control. 

All the money in the world cannot bring back yesterday.  We cannot undo a single act we performed.  Nor can we erase a single word we've said - yesterday is gone!

 

I have problems with Yesterday because of my past.  When I think about it, I feel sad; I can use many words to remind me that I have no worth, regret, remorse, and especially guilt.

I was not nice yesterday, as things were not going my way.  Working on my blog, I could not get the words I wanted so when my husband asked me a question, I told him to leave me alone in an angry way.  Then later at the chiropractors office, it seemed that I was never going to get my back fixed.  It was really cold, and I started to pace waiting around the office, mumbling.  Finally the doctor came and fixed me.  But, I was angry at my actions. Then in the afternoon my hubby and I got on the phones to get tickets for me to go to Brazil.  It was a good thing that Butch was listening and stepping in when I was getting a little angry that the Delta person was not understanding me.  By the end of the day I was tired.

Yes, I told the people thank you for their help, while I was not happy.  It was not their fault I was not feeling well and taking it out on them.  I did it and I felt guilty. I could not take the words back, the attitude back, but I will try to go to God when I need to have patience.

The other day we shouldn't worry about is tomorrow, with its impossible adversaries, its burden, its hopeful promise and poor performance. Tomorrow is beyond our control. 

Tomorrow's sun will rise either in splendor or behind a mask of clouds - but it will rise. And until it does, we have no stake in tomorrow, for it is yet unborn. 

Now I am looking on my calendar, what am I going to do tomorrow?  OK!  Well, tomorrow I will get up anywhere from 3:00 am to 5:30am.  I plan that I will wake up at 5:30.  Then I go to my knees to pray, sit down for quiet time with God and listen to share what He wants me to do that day. I am going to finish a blog that I am struggling with for the last week.  I can get it done. Well, maybe!  Going to church to meet up with Mary Lou so we can practice a song for the 28th this month.  Then I will go to lunch, go to groceries for this the week.  Will go to a meeting for 1½ hrs and head to home for dinner. 

But, what if I forgot to set the alarm clock or Mary Lou gets sick, or my mom calls again for help with her TV?  I might miss lunch and too late for the groceries run because I have to get to the meeting.  I am exhausted now and tomorrow isn’t even here yet.

This leaves only one day - today.  Any person can fight the battles of just one day. It is only when we add the burdens of yesterday and tomorrow that we break down. 
It is not the experience of today that drives people mad - it is the remorse of bitterness for something which happened yesterday, and the dread of what tomorrow may bring. 
Let us, therefore, live one day at a time!

Today, I woke up, at 5:20am.  Prayed with God, talking to Him about the sun coming up, thanking Him for looking over me through the night (sometimes I have nightmares) and I prayed the Serenity Prayer that reminds me that He does give me the serenity I need. Sometimes I have to pray it until I really get it.  Then I get in bed and sit up with arms open and have quiet time and now God does the talking.  And if I listen I might just get what He wants me to do with today. Do I always listen? I try, and I lose my focus, looking at my laptop waiting for me or looking at the fiction book over in the chair or the dog wants to go outside.
Then I had breakfast with Butch, and got ready for church.  I forgot to print some papers for the service and that started a little stress in my mind.  When I got there I had calmed down. I was presiding, it was Communion Service and I had help setting things up and also having readings, scriptures, music, sermon, prayers, everyone in the church were giving ministry to others.  
Was it perfect?  Oh no!  I have a disease that plays with me.  And when it does the stress went up.  Yet others stepped in with help.  I knew I could move over to my friend and asked her to pray for me before the Communion started and did.  I prayed for forgiveness for having knowing that God knew what was happening, I didn’t.  After the service was over and I was calm I knew God was still here with me.
I knew today I would be going to KFC to pick up some of our lunch, and Butch was at home fixing the rest.  After the dishes were done, I came to my chair and put my legs up, the back of the chair went back and it felt good.  Oh, I had my laptop on my lap and checked out the emails, and FaceBook.  Not much going on.  I wanted to work on a blog. I have a couple that have been hard to do.  I remember from this morning to go on my knees to ask what He wanted me to do.   And then I got a nudge to my brain to go back to the Yesterday, Today, Tomorrow blow!  I waited until supper was over.  Now I am here getting close to finishing.  I am moving to the bedroom as my focus is getting stressed a little.  Ok!
When I finish the blog, I will pray to my God my Father who is writing with me, to Christ my brother who teaches me how to live my life and then the Sprit that is in my soul, does the nudging to keep doing what God has told me to do when I doubt.  It works if I Pray.
I am smiling right now.   It is time to close.  My last words of wisdom from me -- remember:
"Yesterday is History, Tomorrow a Mystery, Today is a Gift, That’s why it's called the Present.

*An anonymous poem found via many sources on the internet, including the copy found on this page:   http://www.namastecafe.com/hope/poem.htm. 
 !

Friday, August 5, 2011

A Great Day


Good Morning,  I am fine this morning.  When I woke up today (5:30am) I felt great.  The first thing I did was get on my knees to pray. Praying is a given, a blessing, talking with God, asking what do I do today and God reminding me that he is with me all the time of my life.

Meditation Time:
“God is your healer and your strength.  You do not have to ask him to come to you.  He is always with you in Spirit.  At your moment of need He is there to help you.  Could you know God’s love and his desire to help you, you would know that He needs no pleading for help.  Your need is God’s opportunity.  You must learn to rely on God’s strength whenever you need it.  Whenever you feel  inadequate to any situation, you should realize that the feelings of inadequate is disloyalty to God.  Just say to your self: I know that God is with me and will help me to think and say and do the right thing.

The Prayer for the Day:
I pray that I will never feel inadequate to any situation.  I pray that I may be buoyed up by the feeling that God is with me.”
[Hazelden]  
 
It is my desire is to continue to be close with God and this is one of my songs that reminds me He is here.


Presence (my Heart's Desire) by Newsboyshttp://www.lyricsdepot.com/site/images/phone_icon_blue_small_trans_right.gif
I lift up my voice
To The King, The King of glory
I hold out my hands
To The One who is worthy
I long for Your presence
I long, Lord, I need Your touch

Come, oh Lord, and fill up my life
With the light of Your presence
This is my heart's desire
Oh Father, come and let Your spirit abide
I long for Your presence
This is my heart's desire

I long to be washed
In the well of Your mercy
I long to be warmed
by the fire of Your glory
I long for Your presence
I long for Your healing touch

Come, oh Lord, and fill up my life
With the light of Your presence
This is my heart's desire
Oh Father, come and let Your spirit abide
I long for Your presence
This is my heart's desire

It's my desire

(I wanna feel Your presence)
Lord, it's my desire
(I wanna feel Your presence)
Lord, You're my desire
(I wanna feel Your presence)
I wanna feel Your presence
I wanna feel Your presence
I wanna feel Your presence, Jesus

Come, oh Lord, and fill up my life
With the light of Your presence
This is my heart's desire (this is my heart's desire, oh...)
Come and let Your spirit abide
I long for Your presence (presence...)
This is my heart's desire (this is my heart's desire, oh...)

It's my desire

Lord, You're my desire
Lord, You're my desire

This is going to be a blessed today!